Please Dress Me in Red
In my dual profession as an educator and health care provider, Ihave worked with numerous children infected with the virus that causes AIDS.The relationships that I have had with these special kids have been gifts in mylife. They have taught me so many things, but I have especially learned thatgreat courage can be found in the smallest of packages. Let me tell you aboutTyler.
Tyler was born infected with HIV: his mother was also infected.From the very beginning of his life, he was dependent on medications to enablehim to survive. When he was five, he had a tube surgically inserted in a veinin his chest. This tube was connected to a pump, which he carried in a smallbackpack on his back. Medications were hooked up to this pump and werecontinuously supplied through this tube to his bloodstream. At times, he alsoneeded supplemented oxygen to support his breathing.
Tyler wasn’t willing to give up one single moment of his childhoodto this deadly disease. It was not unusual to find him playing and racingaround his backyard, wearing his medicine-laden backpack and dragging his tankof oxygen behind him in his little wagon. All of us who knew Tyler marveled athis pure joy in being alive and the energy it gave him. Tyler’s mom oftenteased him by telling him that he moved so fast she needed to dress him in red.That way, when she peered through the window to check on him playing in theyard, she could quickly spot him.
This dreaded disease eventually wore down even the likes of alittle dynamo like Tyler. He grew quite ill and, unfortunately, so did hisHIV-infected mother. When it became apparent that he wasn’t going to survive,Tyler’s mom talked to him about death. She comforted him by telling Tyler thatshe was dying too, and that she would be with him soon in heaven.
A few days before his death, Tyler beckoned me over to hishospital bed and whispered, “I might die soon. I’m not scared. When I die,please dress me in red. Mom promised she’s coming to heaven, too. I’ll beplaying when she gets there, and I want to make sure she can find me.”
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